Assessment of Stakeholder Engagement in a Down Syndrome Research Study

There is growing recognition of the importance of engaging patients early in the design of research studies. For studies involving patients with intellectual and cognitive disabilities, researchers may consider engaging with family caregivers, health professionals, community advocates, and/or subjec...

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Dades bibliogràfiques
Publicat a:J Patient Cent Res Rev
Autors principals: Chung, Jeanhee, Sarathy, Ashwini, Hsieh, Yichuan Grace, Estey, Greg, Torres, Amy, Patsiogiannis, Vasiliki, Donelan, Karen, Skotko, Brian G.
Format: Artigo
Idioma:Inglês
Publicat: Aurora Health Care, Inc. 2021
Matèries:
Brief Report
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7834177/
https://ncbi.nlm.nih.gov/pubmed/33511255
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.17294/2330-0698.1777
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