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Assessment of Stakeholder Engagement in a Down Syndrome Research Study

There is growing recognition of the importance of engaging patients early in the design of research studies. For studies involving patients with intellectual and cognitive disabilities, researchers may consider engaging with family caregivers, health professionals, community advocates, and/or subjec...

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Bibliographische Detailangaben
Veröffentlicht in:J Patient Cent Res Rev
Hauptverfasser: Chung, Jeanhee, Sarathy, Ashwini, Hsieh, Yichuan Grace, Estey, Greg, Torres, Amy, Patsiogiannis, Vasiliki, Donelan, Karen, Skotko, Brian G.
Format: Artigo
Sprache:Inglês
Veröffentlicht: Aurora Health Care, Inc. 2021
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7834177/
https://ncbi.nlm.nih.gov/pubmed/33511255
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.17294/2330-0698.1777
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