Patient’s thoughts and expectations about centres of expertise for PKU

BACKGROUND: In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. METHODS: To identify expectations of patients/caregivers with PKU of CEs, a w...

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Bibliografiske detaljer
Udgivet i:Orphanet J Rare Dis
Main Authors: van Wegberg, A. M. J., MacDonald, A., Abeln, D., Hagedorn, T. S., Lange, E., Trefz, F., van Vliet, D., van Spronsen, F. J.
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2021
Fag:
Research
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7789756/
https://ncbi.nlm.nih.gov/pubmed/33407655
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01647-7
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