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Patient’s thoughts and expectations about centres of expertise for PKU

BACKGROUND: In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. METHODS: To identify expectations of patients/caregivers with PKU of CEs, a w...

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Bibliografske podrobnosti
izdano v:	Orphanet J Rare Dis
Main Authors:	van Wegberg, A. M. J., MacDonald, A., Abeln, D., Hagedorn, T. S., Lange, E., Trefz, F., van Vliet, D., van Spronsen, F. J.
Format:	Artigo
Jezik:	Inglês
Izdano:	BioMed Central 2021
Teme:	Research
Online dostop:	https://ncbi.nlm.nih.gov/pmc/articles/PMC7789756/ https://ncbi.nlm.nih.gov/pubmed/33407655 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01647-7
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Patient’s thoughts and expectations about centres of expertise for PKU

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