Parenting a child with Marfan syndrome: Distress and everyday problems

Marfan syndrome (MFS) is a multisystemic, autosomal dominant connective tissue disorder that occurs de novo in 25%. In many families, parent and child(ren) are affected, which may increase distress in parents. To assess distress, 42 mothers (29% MFS) and 25 fathers (60% MFS) of 43 affected children,...

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Detalhes bibliográficos
Publicado no:Am J Med Genet A
Main Authors: Warnink‐Kavelaars, Jessica, van Oers, Hedy A., Haverman, Lotte, Buizer, Annemieke I., Alsem, Mattijs W., Engelbert, Raoul H. H., Menke, Leonie A.
Formato: Artigo
Idioma:Inglês
Publicado em: John Wiley & Sons, Inc. 2020
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Original Articles
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7756496/
https://ncbi.nlm.nih.gov/pubmed/33034422
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.61906
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