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Parenting a child with Marfan syndrome: Distress and everyday problems
Marfan syndrome (MFS) is a multisystemic, autosomal dominant connective tissue disorder that occurs de novo in 25%. In many families, parent and child(ren) are affected, which may increase distress in parents. To assess distress, 42 mothers (29% MFS) and 25 fathers (60% MFS) of 43 affected children,...
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| Veröffentlicht in: | Am J Med Genet A |
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| Hauptverfasser: | , , , , , , |
| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
John Wiley & Sons, Inc.
2020
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7756496/ https://ncbi.nlm.nih.gov/pubmed/33034422 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.61906 |
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