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Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide

BACKGROUND: Personalized ENCALS survival prediction model reliably estimates the personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised on discussing personalized prognosis without causing anxiety and destroying hope. Tailoring communication to patient readiness...

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Detalhes bibliográficos
Publicado no:BMC Neurol
Main Authors: van Eenennaam, Remko M., Kruithof, Willeke J., van Es, Michael A., Kruitwagen-van Reenen, Esther T., Westeneng, Henk-Jan, Visser-Meily, Johanna M. A., van den Berg, Leonard H., Beelen, Anita
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2020
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734773/
https://ncbi.nlm.nih.gov/pubmed/33308184
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12883-020-02004-8
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