Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide

BACKGROUND: Personalized ENCALS survival prediction model reliably estimates the personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised on discussing personalized prognosis without causing anxiety and destroying hope. Tailoring communication to patient readiness...

Full description

Saved in:
Bibliographic Details
Published in:BMC Neurol
Main Authors: van Eenennaam, Remko M., Kruithof, Willeke J., van Es, Michael A., Kruitwagen-van Reenen, Esther T., Westeneng, Henk-Jan, Visser-Meily, Johanna M. A., van den Berg, Leonard H., Beelen, Anita
Format: Artigo
Language:Inglês
Published: BioMed Central 2020
Subjects:
Research Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC7734773/
https://ncbi.nlm.nih.gov/pubmed/33308184
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12883-020-02004-8
Tags: Add Tag
No Tags, Be the first to tag this record!

Similar Items