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What is the future of patient reported outcomes in sickle cell disease?

INTRODUCTION: Sickle cell disease (SCD) is a complex, chronic disease caused by abnormal polymerization of hemoglobin, which leads to severe pain episodes, fatigue, and end-organ damage. Patient reported outcomes (PROs) have emerged as a critical tool for measuring SCD disease severity and response...

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Bibliografiske detaljer
Udgivet i:Expert Rev Hematol
Main Authors: Singh, Sharon A., Bakshi, Nitya, Mahajan, Prashant, Morris, Claudia R.
Format: Artigo
Sprog:Inglês
Udgivet: 2020
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7722233/
https://ncbi.nlm.nih.gov/pubmed/33034214
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17474086.2020.1830370
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