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Preferences for Accessing Electronic Health Records for Research Purposes: Views of Parents Who Have a Child With a Known or Suspected Genetic Condition
OBJECTIVES: The purpose of this study was to examine parental preferences for researchers accessing their child’s electronic health record across 3 groups: those with a child with (1) a known genetic condition (fragile X syndrome FXS), (2) a suspected genetic condition (autism spectrum disorder [ASD...
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| Veröffentlicht in: | Value Health |
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| Hauptverfasser: | , , , , , , , , , |
| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
2020
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7701359/ https://ncbi.nlm.nih.gov/pubmed/33248520 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jval.2020.06.016 |
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