Wird geladen...

Preferences for Accessing Electronic Health Records for Research Purposes: Views of Parents Who Have a Child With a Known or Suspected Genetic Condition

OBJECTIVES: The purpose of this study was to examine parental preferences for researchers accessing their child’s electronic health record across 3 groups: those with a child with (1) a known genetic condition (fragile X syndrome FXS), (2) a suspected genetic condition (autism spectrum disorder [ASD...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:Value Health
Hauptverfasser: Raspa, Melissa, Paquin, Ryan S., Brown, Derek S., Andrews, Sara, Edwards, Anne, Moultrie, Rebecca, Wagner, Laura, Frisch, MaryKate, Turner-Brown, Lauren, Wheeler, Anne C.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2020
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7701359/
https://ncbi.nlm.nih.gov/pubmed/33248520
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jval.2020.06.016
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!