Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review

BACKGROUND: Data from electronic health records (EHRs) are increasingly used in the field of genetic research to further precision medicine initiatives. However, many of these efforts exclude individuals with intellectual disabilities, which often stem from genetic conditions. To include this import...

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Detalhes bibliográficos
Publicado no:J Med Internet Res
Main Authors: Raspa, Melissa, Moultrie, Rebecca, Wagner, Laura, Edwards, Anne, Andrews, Sara, Frisch, Mary Katherine, Turner-Brown, Lauren, Wheeler, Anne
Formato: Artigo
Idioma:Inglês
Publicado em: JMIR Publications 2020
Assuntos:
Review
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7273235/
https://ncbi.nlm.nih.gov/pubmed/32436848
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/16734
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