Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review

BACKGROUND: Data from electronic health records (EHRs) are increasingly used in the field of genetic research to further precision medicine initiatives. However, many of these efforts exclude individuals with intellectual disabilities, which often stem from genetic conditions. To include this import...

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Vydáno v:J Med Internet Res
Hlavní autoři: Raspa, Melissa, Moultrie, Rebecca, Wagner, Laura, Edwards, Anne, Andrews, Sara, Frisch, Mary Katherine, Turner-Brown, Lauren, Wheeler, Anne
Médium: Artigo
Jazyk:Inglês
Vydáno: JMIR Publications 2020
Témata:
Review
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC7273235/
https://ncbi.nlm.nih.gov/pubmed/32436848
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/16734
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