Quality of life drives patients’ preferences for secondary findings from genomic sequencing

There is growing impetus to include measures of personal utility, the nonmedical value of information, in addition to clinical utility in health technology assessment (HTA) of genomic tests such as genomic sequencing (GS). However, personal utility and clinical utility are challenging to define and...

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Pubblicato in:Eur J Hum Genet
Autori principali: Mighton, Chloe, Carlsson, Lindsay, Clausen, Marc, Casalino, Selina, Shickh, Salma, McCuaig, Laura, Joshi, Esha, Panchal, Seema, Semotiuk, Kara, Ott, Karen, Elser, Christine, Eisen, Andrea, Kim, Raymond H., Lerner-Ellis, Jordan, Carroll, June C., Glogowski, Emily, Schrader, Kasmintan, Bombard, Yvonne
Natura: Artigo
Lingua:Inglês
Pubblicazione: Springer International Publishing 2020
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7609335/
https://ncbi.nlm.nih.gov/pubmed/32424322
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-020-0640-x
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