Quality of life drives patients’ preferences for secondary findings from genomic sequencing

There is growing impetus to include measures of personal utility, the nonmedical value of information, in addition to clinical utility in health technology assessment (HTA) of genomic tests such as genomic sequencing (GS). However, personal utility and clinical utility are challenging to define and...

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Bibliographic Details
Published in:Eur J Hum Genet
Main Authors: Mighton, Chloe, Carlsson, Lindsay, Clausen, Marc, Casalino, Selina, Shickh, Salma, McCuaig, Laura, Joshi, Esha, Panchal, Seema, Semotiuk, Kara, Ott, Karen, Elser, Christine, Eisen, Andrea, Kim, Raymond H., Lerner-Ellis, Jordan, Carroll, June C., Glogowski, Emily, Schrader, Kasmintan, Bombard, Yvonne
Format: Artigo
Language:Inglês
Published: Springer International Publishing 2020
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Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC7609335/
https://ncbi.nlm.nih.gov/pubmed/32424322
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-020-0640-x
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