Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

BACKGROUND. Health researchers are increasingly using electronic health records (EHRs) to study the health care needs of people with neurodevelopmental disorders (NDDs). However, little is known about the preferences of people with NDDs for sharing EHRs for research. OBJECTIVE. To explore preference...

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Detalhes bibliográficos
Publicado no:Disabil Health J
Main Authors: Wagner, Laura, Frisch, MaryKate, Turner-Brown, Lauren, Andrews, Sara, Edwards, Anne, Moultrie, Rebecca, Rivas, Alexandra Alvarez, Wheeler, Anne, Raspa, Melissa
Formato: Artigo
Idioma:Inglês
Publicado em: 2020
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7541430/
https://ncbi.nlm.nih.gov/pubmed/32360031
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.dhjo.2020.100927
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