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Waiting and “weighted down”: the challenge of anticipatory loss for individuals and families with Li‑Fraumeni Syndrome
Li-Fraumeni Syndrome (LFS) is characterized by risk of multiple primary malignancies in diverse sites, pediatric onset, near complete penetrance by age 70 years, limited options for prevention, and substantial uncertainty regarding disease manifestation and prognosis. Forty-five families, including...
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| Publicado no: | Fam Cancer |
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| Main Authors: | , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7440840/ https://ncbi.nlm.nih.gov/pubmed/32222840 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10689-020-00173-6 |
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