Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations

Li-Fraumeni Syndrome (LFS) is a hereditary disorder that confers an approximately 90% lifetime risk of cancer and requires comprehensive lifetime cancer screening. We explored healthcare roles for managing LFS-related cancer risks and treatments that were assumed by parents, adolescents, and adult c...

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Udgivet i:Fam Process
Main Authors: PANTALEAO, ASHLEY, YOUNG, JENNIFER L., EPSTEIN, NORMAN B., CARLSON, MAE, BREMER, RENÉE C., KHINCHA, PAYAL P., PETERS, JUNE A., GREENE, MARK H., ROY, KEVIN, ACHATZ, MARIA ISABEL, SAVAGE, SHARON A., WERNER-LIN, ALLISON
Format: Artigo
Sprog:Inglês
Udgivet: 2019
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7434614/
https://ncbi.nlm.nih.gov/pubmed/31647118
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/famp.12497
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