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Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations
Li-Fraumeni Syndrome (LFS) is a hereditary disorder that confers an approximately 90% lifetime risk of cancer and requires comprehensive lifetime cancer screening. We explored healthcare roles for managing LFS-related cancer risks and treatments that were assumed by parents, adolescents, and adult c...
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| Pubblicato in: | Fam Process |
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| Autori principali: | , , , , , , , , , , , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
2019
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7434614/ https://ncbi.nlm.nih.gov/pubmed/31647118 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/famp.12497 |
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