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Health-related quality of life in porphyria cutanea tarda: a cross-sectional registry based study

BACKGROUND: Porphyria cutanea tarda (PCT) is a rare, photosensitive disease characterized by skin fragility and blistering on sun-exposed areas. There is little previous research on how this condition affects health-related quality of life (HRQoL) and to the best of our knowledge this is the largest...

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Détails bibliographiques
Publié dans:Health Qual Life Outcomes
Auteurs principaux: Andersen, Janice, Thomsen, Janne, Enes, Åshild Rostad, Sandberg, Sverre, Aarsand, Aasne K.
Format: Artigo
Langue:Inglês
Publié: BioMed Central 2020
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC7106654/
https://ncbi.nlm.nih.gov/pubmed/32228630
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-020-01328-w
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