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Research priorities for liver glycogen storage disease: An international priority setting partnership with the James Lind Alliance

The international liver glycogen storage disease (GSD) priority setting partnership (IGSDPSP) was established to identify the top research priorities in this area. The multiphase methodology followed the principles of the James Lind Alliance (JLA) guidebook. An international scoping survey in seven...

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Veröffentlicht in:J Inherit Metab Dis
Hauptverfasser: Peeks, Fabian, Boonstra, Willemijn F., de Baere, Lut, Carøe, Camilla, Casswall, Thomas, Cohen, Damián, Cowan, Katherine, Ferrecchia, Iris, Ferriani, Alberto, Gimbert, Caroline, Landgren, Marcus, Maldonado, Nerea L., McMillan, Jason, Nemeth, Antal, Seidita, Niccolò, Stachelhaus‐Theimer, Ute, Weinstein, David A., Derks, Terry G. J.
Format: Artigo
Sprache:Inglês
Veröffentlicht: John Wiley & Sons, Inc. 2019
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7079148/
https://ncbi.nlm.nih.gov/pubmed/31587328
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jimd.12178
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