Research priorities for liver glycogen storage disease: An international priority setting partnership with the James Lind Alliance

The international liver glycogen storage disease (GSD) priority setting partnership (IGSDPSP) was established to identify the top research priorities in this area. The multiphase methodology followed the principles of the James Lind Alliance (JLA) guidebook. An international scoping survey in seven...

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Detalhes bibliográficos
Publicado no:J Inherit Metab Dis
Main Authors: Peeks, Fabian, Boonstra, Willemijn F., de Baere, Lut, Carøe, Camilla, Casswall, Thomas, Cohen, Damián, Cowan, Katherine, Ferrecchia, Iris, Ferriani, Alberto, Gimbert, Caroline, Landgren, Marcus, Maldonado, Nerea L., McMillan, Jason, Nemeth, Antal, Seidita, Niccolò, Stachelhaus‐Theimer, Ute, Weinstein, David A., Derks, Terry G. J.
Formato: Artigo
Idioma:Inglês
Publicado em: John Wiley & Sons, Inc. 2019
Assuntos:
Original Articles
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7079148/
https://ncbi.nlm.nih.gov/pubmed/31587328
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jimd.12178
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