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A civil society view of rare disease public policy in six Latin American countries

Patients with rare diseases across the world struggle to access timely diagnosis and state-of-the-art treatment and management of their conditions. Several recently published reviews highlight the importance of country efforts to address rare diseases and orphan drugs policy comprehensively. However...

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Bibliografski detalji
Izdano u:Orphanet J Rare Dis
Glavni autori: Mayrides, Mo, Ruiz de Castilla, Eva Maria, Szelepski, Silvina
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2020
Teme:
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC7047392/
https://ncbi.nlm.nih.gov/pubmed/32106873
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-1314-z
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