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Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders

Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and across health, social, and family systems. The purpose of this...

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Bibliografiske detaljer
Udgivet i:Int J Qual Stud Health Well-being
Main Authors: Currie, Genevieve, Szabo, Joanna
Format: Artigo
Sprog:Inglês
Udgivet: Taylor & Francis 2020
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7034477/
https://ncbi.nlm.nih.gov/pubmed/32048917
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17482631.2020.1725362
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