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Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders

Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and across health, social, and family systems. The purpose of this...

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Dades bibliogràfiques
Publicat a:Int J Qual Stud Health Well-being
Autors principals: Currie, Genevieve, Szabo, Joanna
Format: Artigo
Idioma:Inglês
Publicat: Taylor & Francis 2020
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Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7034477/
https://ncbi.nlm.nih.gov/pubmed/32048917
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17482631.2020.1725362
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