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Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders

Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and across health, social, and family systems. The purpose of this...

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Detalhes bibliográficos
Publicado no:Int J Qual Stud Health Well-being
Main Authors: Currie, Genevieve, Szabo, Joanna
Formato: Artigo
Idioma:Inglês
Publicado em: Taylor & Francis 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7034477/
https://ncbi.nlm.nih.gov/pubmed/32048917
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17482631.2020.1725362
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