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Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses

BACKGROUND: Research is needed to improve care and diminish suffering for children with life-limiting illnesses and their parents. However, there are doubts about whether it is possible to conduct paediatric end of life research safely and ethically, as it may unduly burden or inadvertently harm par...

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Enregistré dans:
Détails bibliographiques
Publié dans:Nurse Res
Auteurs principaux: Hopper, Audrey, Crane, Stacey
Format: Artigo
Langue:Inglês
Publié: 2019
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC7008129/
https://ncbi.nlm.nih.gov/pubmed/31468872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.7748/nr.2019.e1617
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