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Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses

BACKGROUND: Research is needed to improve care and diminish suffering for children with life-limiting illnesses and their parents. However, there are doubts about whether it is possible to conduct paediatric end of life research safely and ethically, as it may unduly burden or inadvertently harm par...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Nurse Res
Main Authors: Hopper, Audrey, Crane, Stacey
Format: Artigo
Jezik:Inglês
Izdano: 2019
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC7008129/
https://ncbi.nlm.nih.gov/pubmed/31468872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.7748/nr.2019.e1617
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