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Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses

BACKGROUND: Research is needed to improve care and diminish suffering for children with life-limiting illnesses and their parents. However, there are doubts about whether it is possible to conduct paediatric end of life research safely and ethically, as it may unduly burden or inadvertently harm par...

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Detalhes bibliográficos
Publicado no:Nurse Res
Main Authors: Hopper, Audrey, Crane, Stacey
Formato: Artigo
Idioma:Inglês
Publicado em: 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7008129/
https://ncbi.nlm.nih.gov/pubmed/31468872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.7748/nr.2019.e1617
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