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Developing interactions with industry in rare diseases: lessons learned and continuing challenges

The National Institutes of Health (NIH) established the Rare Diseases Clinical Research Network to address the unique challenges of performing research on rare diseases. The Urea Cycle Disorders Consortium (UCDC) was one of the original ten consortia established. The UCDC represents a unique partner...

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Dades bibliogràfiques
Publicat a:Genet Med
Autors principals: Berry, Susan A., Coughlin, Curtis R., McCandless, Shawn, McCarter, Robert, Seminara, Jennifer, Yudkoff, Mark, LeMons, Cynthia
Format: Artigo
Idioma:Inglês
Publicat: Nature Publishing Group US 2019
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6944635/
https://ncbi.nlm.nih.gov/pubmed/31337884
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41436-019-0616-9
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