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Developing interactions with industry in rare diseases: lessons learned and continuing challenges

The National Institutes of Health (NIH) established the Rare Diseases Clinical Research Network to address the unique challenges of performing research on rare diseases. The Urea Cycle Disorders Consortium (UCDC) was one of the original ten consortia established. The UCDC represents a unique partner...

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Detalhes bibliográficos
Publicado no:Genet Med
Main Authors: Berry, Susan A., Coughlin, Curtis R., McCandless, Shawn, McCarter, Robert, Seminara, Jennifer, Yudkoff, Mark, LeMons, Cynthia
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group US 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6944635/
https://ncbi.nlm.nih.gov/pubmed/31337884
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41436-019-0616-9
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