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Responsible data sharing in a big data-driven translational research platform: lessons learned

BACKGROUND: To foster responsible data sharing in health research, ethical governance complementary to the EU General Data Protection Regulation is necessary. A governance framework for Big Data-driven research platforms will at least need to consider the conditions as specified a priori for individ...

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書誌詳細
出版年:BMC Med Inform Decis Mak
主要な著者: Kalkman, S., Mostert, M., Udo-Beauvisage, N., van Delden, J. J., van Thiel, G. J.
フォーマット: Artigo
言語:Inglês
出版事項: BioMed Central 2019
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC6936121/
https://ncbi.nlm.nih.gov/pubmed/31888593
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12911-019-1001-y
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