Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations

Purpose. To determine the patient-centeredness of endocrine and bone health Duchenne muscular dystrophy (DMD) care considerations using the RAND/PPMD Patient-Centeredness Method (RPM), which is a novel, online, modified-Delphi approach to engaging patients and caregivers in clinical guideline develo...

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Publicat a:Med Decis Making
Autors principals: Khodyakov, Dmitry, Grant, Sean, Denger, Brian, Kinnett, Kathi, Martin, Ann, Booth, Marika, Armstrong, Courtney, Dao, Emily, Chen, Christine, Coulter, Ian, Peay, Holly, Hazlewood, Glen, Street, Natalie
Format: Artigo
Idioma:Inglês
Publicat: SAGE Publications 2019
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Original Articles
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6900571/
https://ncbi.nlm.nih.gov/pubmed/31722623
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/0272989X19883631
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