Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy

BACKGROUND: Clinical care guidelines are typically developed by clinicians and researchers. Including patient and caregiver voices in guideline development may help create guidelines that are more useful for patients and consequently improve their guideline adherence. Although there is substantial r...

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Detalles Bibliográficos
Publicado en:Orphanet J Rare Dis
Main Authors: Denger, Brian, Kinnett, Kathi, Martin, Ann, Grant, Sean, Armstrong, Courtney, Khodyakov, Dmitry
Formato: Artigo
Idioma:Inglês
Publicado: BioMed Central 2019
Assuntos:
Research
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC6702715/
https://ncbi.nlm.nih.gov/pubmed/31429780
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1173-7
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