Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol

BACKGROUND: Clinical guidelines provide systematically developed recommendations for deciding on appropriate health care options for specific conditions and clinical circumstances. Up until recently, patients and caregivers have rarely been included in the process of developing care guidelines. OBJE...

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Bibliographic Details
Published in:JMIR Res Protoc
Main Authors: Khodyakov, Dmitry, Kinnett, Kathi, Grant, Sean, Lucas, Ann, Martin, Ann, Denger, Brian, Peay, Holly, Coulter, Ian, Fink, Arlene
Format: Artigo
Language:Inglês
Published: JMIR Publications 2017
Subjects:
Protocol
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC5429434/
https://ncbi.nlm.nih.gov/pubmed/28455279
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/resprot.6902
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