Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol

BACKGROUND: Clinical guidelines provide systematically developed recommendations for deciding on appropriate health care options for specific conditions and clinical circumstances. Up until recently, patients and caregivers have rarely been included in the process of developing care guidelines. OBJE...

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Dettagli Bibliografici
Pubblicato in:JMIR Res Protoc
Autori principali: Khodyakov, Dmitry, Kinnett, Kathi, Grant, Sean, Lucas, Ann, Martin, Ann, Denger, Brian, Peay, Holly, Coulter, Ian, Fink, Arlene
Natura: Artigo
Lingua:Inglês
Pubblicazione: JMIR Publications 2017
Soggetti:
Protocol
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5429434/
https://ncbi.nlm.nih.gov/pubmed/28455279
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/resprot.6902
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