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‘It would be much easier if we were just quiet and disappeared’: Parents silenced in the experience of caring for children with rare diseases
BACKGROUND: Parent experiences of caring for children with neurodevelopmental disease have been silenced and constrained by social, political and health influences. There is a need to co‐construct new meanings and interpretations of parenting a child with complex disabilities by having an increased...
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| Pubblicato in: | Health Expect |
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| Autori principali: | , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
John Wiley and Sons Inc.
2019
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6882256/ https://ncbi.nlm.nih.gov/pubmed/31466132 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/hex.12958 |
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