End of Life Measures in Huntington Disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning

BACKGROUND AND PURPOSE. Huntington disease (HD) is a progressive neurodegenerative disorder. There are no HD-specific measures to assess for end-of-life (EOL) preferences that have been validated for clinical use. The purpose of this study is to demonstrate reliability and validity of three HD-speci...

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Bibliographic Details
Published in:J Neurol
Main Authors: Carlozzi, Noelle E., Boileau, Nicholas R., Paulsen, Jane S., Perlmutter, Joel S., Lai, Jin-Shei, Hahn, Elizabeth A., McCormack, Michael K., Nance, Martha A., Cella, David, Barton, Stacey K., Downing, Nancy R.
Format: Artigo
Language:Inglês
Published: 2019
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Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC6766417/
https://ncbi.nlm.nih.gov/pubmed/31190171
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00415-019-09417-7
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