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End of Life Measures in Huntington Disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning
BACKGROUND AND PURPOSE. Huntington disease (HD) is a progressive neurodegenerative disorder. There are no HD-specific measures to assess for end-of-life (EOL) preferences that have been validated for clinical use. The purpose of this study is to demonstrate reliability and validity of three HD-speci...
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| Publicado no: | J Neurol |
|---|---|
| Main Authors: | , , , , , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2019
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6766417/ https://ncbi.nlm.nih.gov/pubmed/31190171 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00415-019-09417-7 |
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