A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE End of Life Planning

BACKGROUND: Huntington disease is a fatal inherited neurodegenerative disease. Because the end result of Huntington disease is death due to Huntington disease-related causes, there is a need for better understanding and caring for individuals at their end of life. AIM: The purpose of this study was...

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Detalhes bibliográficos
Publicado no:J Neurol
Main Authors: Carlozzi, N.E., Hahn, E.A., Frank, S., Perlmutter, J.S., Downing, N.D., McCormack, M.K., Barton, S., Nance, M.A., Schilling, S.G.
Formato: Artigo
Idioma:Inglês
Publicado em: 2017
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5762414/
https://ncbi.nlm.nih.gov/pubmed/29143208
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00415-017-8677-7
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