Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research

IMPORTANCE: Patients increasingly demand transparency in and control of how their medical records and biospecimens are shared for research. How much they are willing to share and what factors influence their sharing preferences remain understudied in real settings. OBJECTIVES: To examine whether and...

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Detalhes bibliográficos
Publicado no:JAMA Netw Open
Main Authors: Kim, Jihoon, Kim, Hyeoneui, Bell, Elizabeth, Bath, Tyler, Paul, Paulina, Pham, Anh, Jiang, Xiaoqian, Zheng, Kai, Ohno-Machado, Lucila
Formato: Artigo
Idioma:Inglês
Publicado em: American Medical Association 2019
Assuntos:
Original Investigation
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6707015/
https://ncbi.nlm.nih.gov/pubmed/31433479
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1001/jamanetworkopen.2019.9550
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