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Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research

IMPORTANCE: Patients increasingly demand transparency in and control of how their medical records and biospecimens are shared for research. How much they are willing to share and what factors influence their sharing preferences remain understudied in real settings. OBJECTIVES: To examine whether and...

תיאור מלא

שמור ב:
מידע ביבליוגרפי
הוצא לאור ב:JAMA Netw Open
Main Authors: Kim, Jihoon, Kim, Hyeoneui, Bell, Elizabeth, Bath, Tyler, Paul, Paulina, Pham, Anh, Jiang, Xiaoqian, Zheng, Kai, Ohno-Machado, Lucila
פורמט: Artigo
שפה:Inglês
יצא לאור: American Medical Association 2019
נושאים:
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC6707015/
https://ncbi.nlm.nih.gov/pubmed/31433479
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1001/jamanetworkopen.2019.9550
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