Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research

IMPORTANCE: Patients increasingly demand transparency in and control of how their medical records and biospecimens are shared for research. How much they are willing to share and what factors influence their sharing preferences remain understudied in real settings. OBJECTIVES: To examine whether and...

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Bibliografiske detaljer
Udgivet i:JAMA Netw Open
Main Authors: Kim, Jihoon, Kim, Hyeoneui, Bell, Elizabeth, Bath, Tyler, Paul, Paulina, Pham, Anh, Jiang, Xiaoqian, Zheng, Kai, Ohno-Machado, Lucila
Format: Artigo
Sprog:Inglês
Udgivet: American Medical Association 2019
Fag:
Original Investigation
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6707015/
https://ncbi.nlm.nih.gov/pubmed/31433479
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1001/jamanetworkopen.2019.9550
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