Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research

IMPORTANCE: Patients increasingly demand transparency in and control of how their medical records and biospecimens are shared for research. How much they are willing to share and what factors influence their sharing preferences remain understudied in real settings. OBJECTIVES: To examine whether and...

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Bibliografiset tiedot
Julkaisussa:JAMA Netw Open
Päätekijät: Kim, Jihoon, Kim, Hyeoneui, Bell, Elizabeth, Bath, Tyler, Paul, Paulina, Pham, Anh, Jiang, Xiaoqian, Zheng, Kai, Ohno-Machado, Lucila
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: American Medical Association 2019
Aiheet:
Original Investigation
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC6707015/
https://ncbi.nlm.nih.gov/pubmed/31433479
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1001/jamanetworkopen.2019.9550
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