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Understanding what information is valued by research participants and why

There is growing public demand that research participants receive all their results regardless of whether clinical action is indicated. Instead of the standard practice of returning only actionable results, we propose a reconceptualization called “return of value” to encompass the varied ways in whi...

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Bibliographische Detailangaben
Veröffentlicht in:Health Aff (Millwood)
Hauptverfasser: Wilkins, Consuelo H., Mapes, Brandy, Jerome, Rebecca N., Villalta-Gil, Victoria, Pulley, Jill M., Harris, Paul A.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2019
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6706772/
https://ncbi.nlm.nih.gov/pubmed/30830824
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1377/hlthaff.2018.05046
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