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Understanding what information is valued by research participants and why

There is growing public demand that research participants receive all their results regardless of whether clinical action is indicated. Instead of the standard practice of returning only actionable results, we propose a reconceptualization called “return of value” to encompass the varied ways in whi...

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Detalhes bibliográficos
Publicado no:Health Aff (Millwood)
Main Authors: Wilkins, Consuelo H., Mapes, Brandy, Jerome, Rebecca N., Villalta-Gil, Victoria, Pulley, Jill M., Harris, Paul A.
Formato: Artigo
Idioma:Inglês
Publicado em: 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6706772/
https://ncbi.nlm.nih.gov/pubmed/30830824
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1377/hlthaff.2018.05046
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