Validation of a patient‐reported outcomes symptom measure for patients with nontransfusion‐dependent thalassemia (NTDT‐PRO(©))

This study demonstrates the quantitative characteristics of the first patient‐reported outcome (PRO) tool developed for patients with nontransfusion‐dependent β‐thalassemia (NTDT), the NTDT‐PRO(©). A multicenter validation study was performed over 24 weeks, involving 48 patients from Italy, Lebanon,...

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Vydáno v:Am J Hematol
Hlavní autoři: Taher, Ali, Cappellini, Maria Domenica, Viprakasit, Vip, Sutcharitchan, Pranee, Mahmoud, Dalia, Laadem, Abderrahmane, Khan, Anzalee, Gwaltney, Chad, Harding, Gale, Attie, Kenneth, Zhang, Xiaosha, Zou, Jun, Pariseau, Joseph, Henry Hu, X., Kattamis, Antonis
Médium: Artigo
Jazyk:Inglês
Vydáno: John Wiley & Sons, Inc. 2018
Témata:
Research Articles
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6587834/
https://ncbi.nlm.nih.gov/pubmed/30394570
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajh.25344
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