Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence

PURPOSE: Li-Fraumeni Syndrome (LFS) is an inherited tumor predisposition syndrome with lifetime cancer risks approaching 100% and evolving risk-management strategies. This study evaluated couples’ coping with LFS-related burdens. RESEARCH APPROACH: Constructivist grounded theory and anticipatory los...

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Detalhes bibliográficos
Publicado no:J Psychosoc Oncol
Main Authors: Young, Jennifer L., Pantaleao, Ashley, Zaspel, Lori, Bayer, Jessica, Peters, June A., Khincha, Payal P., Bremer, Renee C., Loud, Jennifer T., Greene, Mark H., Achatz, Maria Isabel, Savage, Sharon A., Werner-Lin, Allison
Formato: Artigo
Idioma:Inglês
Publicado em: 2018
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6584025/
https://ncbi.nlm.nih.gov/pubmed/30591002
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/07347332.2018.1543376
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