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Research activity and capability in the European reference network MetabERN

BACKGROUND: MetabERN is one of the 24 European Reference Networks created according to the European Union directive 2011/24/EU on patient’s rights in cross border healthcare. MetabERN associates 69 centres in 18 countries, which provide care for patients with Hereditary Metabolic Diseases, and have...

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Détails bibliographiques
Publié dans:Orphanet J Rare Dis
Auteurs principaux: Heard, Jean-Michel, Bellettato, Cinzia, van Lingen, Corine, Scarpa, Maurizio
Format: Artigo
Langue:Inglês
Publié: BioMed Central 2019
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC6542047/
https://ncbi.nlm.nih.gov/pubmed/31142374
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1091-8
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