Position statement on access to care in rare liver diseases: advancements of the European reference network (ERN) RARE-LIVER

The European Reference Network for rare liver diseases (ERN RARE-LIVER) is a Europe-wide network of paediatric and adult hepatologists from expert centres in close collaboration with patient advocates from the various disease-areas covered in our ERN. The ERN is focused on providing more equitable c...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Bernts, Lucas H. P., Jones, David E. J., Kaatee, Marleen M., Lohse, Ansgar W., Schramm, Christoph, Sturm, Ekkehard, Drenth, Joost P. H.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
Assuntos:
Position Statement
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6615270/
https://ncbi.nlm.nih.gov/pubmed/31287000
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1152-z
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