Collecting patient preference information using a Clinical Data Research Network: demonstrating feasibility with idiopathic pulmonary fibrosis

Purpose: Rare diseases present challenges for accessing patient populations to conduct surveys. Clinical Data Research Networks (CDRNs) offer an opportunity to overcome those challenges by providing infrastructure for accessing patients and sharing data. This study aims to demonstrate the feasibilit...

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Bibliographic Details
Published in:Patient Prefer Adherence
Main Authors: Hollin, Ilene L, Dimmock, Anne EF, Bridges, John FP, Danoff, Sonye K, Bascom, Rebecca
Format: Artigo
Language:Inglês
Published: Dove 2019
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Original Research
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC6529600/
https://ncbi.nlm.nih.gov/pubmed/31190761
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2147/PPA.S201632
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