Collecting patient preference information using a Clinical Data Research Network: demonstrating feasibility with idiopathic pulmonary fibrosis

Purpose: Rare diseases present challenges for accessing patient populations to conduct surveys. Clinical Data Research Networks (CDRNs) offer an opportunity to overcome those challenges by providing infrastructure for accessing patients and sharing data. This study aims to demonstrate the feasibilit...

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Detalhes bibliográficos
Publicado no:Patient Prefer Adherence
Main Authors: Hollin, Ilene L, Dimmock, Anne EF, Bridges, John FP, Danoff, Sonye K, Bascom, Rebecca
Formato: Artigo
Idioma:Inglês
Publicado em: Dove 2019
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Original Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6529600/
https://ncbi.nlm.nih.gov/pubmed/31190761
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2147/PPA.S201632
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