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Cases from the Undiagnosed Diseases Network: The Continued Value of Counseling Skills in a New Genomic Era
The “diagnostic odyssey” is well known and described in genetic counseling literature. Studies addressing the psychological, emotional, and financial costs of not having a diagnosis have shown how it permeates the lives of patients and families. The Undiagnosed Diseases Network aims to end this odys...
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| Publicado en: | J Genet Couns |
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| Autores principales: | , , , , , , , , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
2019
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6456366/ https://ncbi.nlm.nih.gov/pubmed/30680851 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jgc4.1091 |
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