A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

BACKGROUND: Patients’ stories of their illnesses help bridge the divide between patients and providers, facilitating more humane medical care. Illness narratives have been classified into three types: restitution (expectation of recovery), chaos (suffering and loss), and quest (unexpected positive e...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Spillmann, Rebecca C., McConkie-Rosell, Allyn, Pena, Loren, Jiang, Yong-Hui, Schoch, Kelly, Walley, Nicole, Sanders, Camilla, Sullivan, Jennifer, Hooper, Stephen R., Shashi, Vandana
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2017
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5392939/
https://ncbi.nlm.nih.gov/pubmed/28416019
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0623-3
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