Assessment of the Timing of Milestone Clinical Events in Patients With Epidermolysis Bullosa From North America

IMPORTANCE: Children with epidermolysis bullosa (EB) comprise a rare population with high morbidity and mortality. An improved understanding of the clinical trajectory of patients with EB, including age at time of clinical diagnosis and major clinical events, is needed to refine best practices and i...

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Vydáno v:JAMA Dermatol
Hlavní autoři: Feinstein, James A., Jambal, Purevsuren, Peoples, Kathleen, Lucky, Anne W., Khuu, Phuong, Tang, Jean Y., Lara-Corrales, Irene, Pope, Elena, Wiss, Karen, Hook, Kristen P., Levin, Laura E., Morel, Kimberly D., Paller, Amy S., McCuaig, Catherine C., Powell, Julie, Eichenfield, Lawrence F., Price, Harper, Levy, Moise L., Schachner, Lawrence A., Browning, John C., Bayliss, Susan, Jahnke, Marla, Shwayder, Tor, Glick, Sharon A., Bruckner, Anna L.
Médium: Artigo
Jazyk:Inglês
Vydáno: American Medical Association 2018
Témata:
Original Investigation
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6439540/
https://ncbi.nlm.nih.gov/pubmed/30586139
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1001/jamadermatol.2018.4673
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