Assessment of the Timing of Milestone Clinical Events in Patients With Epidermolysis Bullosa From North America

IMPORTANCE: Children with epidermolysis bullosa (EB) comprise a rare population with high morbidity and mortality. An improved understanding of the clinical trajectory of patients with EB, including age at time of clinical diagnosis and major clinical events, is needed to refine best practices and i...

תיאור מלא

שמור ב:
מידע ביבליוגרפי
הוצא לאור ב:JAMA Dermatol
Main Authors: Feinstein, James A., Jambal, Purevsuren, Peoples, Kathleen, Lucky, Anne W., Khuu, Phuong, Tang, Jean Y., Lara-Corrales, Irene, Pope, Elena, Wiss, Karen, Hook, Kristen P., Levin, Laura E., Morel, Kimberly D., Paller, Amy S., McCuaig, Catherine C., Powell, Julie, Eichenfield, Lawrence F., Price, Harper, Levy, Moise L., Schachner, Lawrence A., Browning, John C., Bayliss, Susan, Jahnke, Marla, Shwayder, Tor, Glick, Sharon A., Bruckner, Anna L.
פורמט: Artigo
שפה:Inglês
יצא לאור: American Medical Association 2018
נושאים:
Original Investigation
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC6439540/
https://ncbi.nlm.nih.gov/pubmed/30586139
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1001/jamadermatol.2018.4673
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