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Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project

The return of information from genomic sequencing in children, especially in early life, brings up complex issues around parental autonomy, the child’s future autonomy, the best interest standard, and the best interests of the family. These issues are particularly important in considering the return...

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Publicado en:Pediatrics
Autores principales: Holm, Ingrid A., McGuire, Amy, Pereira, Stacey, Rehm, Heidi, Green, Robert C., Beggs, Alan H.
Formato: Artigo
Lenguaje:Inglês
Publicado: 2019
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Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC6433124/
https://ncbi.nlm.nih.gov/pubmed/30600270
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2018-1099H
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