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Development of a Consent Resource for Genomic Data Sharing in the Clinical Setting

PURPOSE: Data sharing between clinicians, laboratories, and patients is essential for improvements in genomic medicine, but obtaining consent for individual-level data sharing is often hindered by a lack of time and resources. To address this issue, the Clinical Genome Resource (ClinGen) developed t...

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Bibliografski detalji
Izdano u:Genet Med
Glavni autori: Riggs, Erin Rooney, Azzariti, Danielle R., Niehaus, Annie, Goehringer, Scott R., Ramos, Erin M., Rodriguez, Laura Lyman, Knoppers, Bartha, Rehm, Heidi L., Martin, Christa Lese
Format: Artigo
Jezik:Inglês
Izdano: 2018
Teme:
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6292744/
https://ncbi.nlm.nih.gov/pubmed/29899502
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41436-018-0017-5
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