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Coping Strategies, Stress, and Support Needs in Caregivers of Children with Mucopolysaccharidosis

The mucopolysaccharidoses are a set of rare, inherited conditions that can have a catastrophic impact on those affected and their families. Because of the rarity of these disorders, little is known regarding the challenges faced by families of those affected and what coping mechanisms are commonly u...

תיאור מלא

שמור ב:
מידע ביבליוגרפי
הוצא לאור ב:JIMD Rep
Main Authors: Schadewald, Amy, Kimball, Ericka, Ou, Li
פורמט: Artigo
שפה:Inglês
יצא לאור: Springer Berlin Heidelberg 2018
נושאים:
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC6226403/
https://ncbi.nlm.nih.gov/pubmed/29299872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2017_87
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