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Coping Strategies, Stress, and Support Needs in Caregivers of Children with Mucopolysaccharidosis

The mucopolysaccharidoses are a set of rare, inherited conditions that can have a catastrophic impact on those affected and their families. Because of the rarity of these disorders, little is known regarding the challenges faced by families of those affected and what coping mechanisms are commonly u...

Ausführliche Beschreibung

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Bibliographische Detailangaben
Veröffentlicht in:JIMD Rep
Hauptverfasser: Schadewald, Amy, Kimball, Ericka, Ou, Li
Format: Artigo
Sprache:Inglês
Veröffentlicht: Springer Berlin Heidelberg 2018
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6226403/
https://ncbi.nlm.nih.gov/pubmed/29299872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2017_87
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