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Coping Strategies, Stress, and Support Needs in Caregivers of Children with Mucopolysaccharidosis

The mucopolysaccharidoses are a set of rare, inherited conditions that can have a catastrophic impact on those affected and their families. Because of the rarity of these disorders, little is known regarding the challenges faced by families of those affected and what coping mechanisms are commonly u...

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Bibliografiske detaljer
Udgivet i:JIMD Rep
Main Authors: Schadewald, Amy, Kimball, Ericka, Ou, Li
Format: Artigo
Sprog:Inglês
Udgivet: Springer Berlin Heidelberg 2018
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6226403/
https://ncbi.nlm.nih.gov/pubmed/29299872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2017_87
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