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Coping Strategies, Stress, and Support Needs in Caregivers of Children with Mucopolysaccharidosis
The mucopolysaccharidoses are a set of rare, inherited conditions that can have a catastrophic impact on those affected and their families. Because of the rarity of these disorders, little is known regarding the challenges faced by families of those affected and what coping mechanisms are commonly u...
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| Veröffentlicht in: | JIMD Rep |
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| Hauptverfasser: | , , |
| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
Springer Berlin Heidelberg
2018
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6226403/ https://ncbi.nlm.nih.gov/pubmed/29299872 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2017_87 |
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